42 Children Died because of Thalassemia in Raqqa during 2014


42 children died because of Thalassemia in 2014, with documented names because of the bad situation experienced by the health sector in Raqqa, where ISIS group prevents many medical organizations of work, and because of the lack of support for Thalassemia Center in Raqqa, and lack of awareness of the importance of the analysis that must be made before the marriage, because the origin of this disease is hereditary.

Thalassemia (anemia Mediterranean basin) is attributable to a defect in the genes cause chronic anemia, where affects the blood-making process, so the hemoglobin in red blood cells is unable to do its function, what causes chronic anemia in children’s blood in early stage of age, as a result of receiving two infected genes, one from father and the other from mother, this disease may leads to death in some patients, and it’s diagnosed by the laboratory test known as electric deportation.

Thalassemia Center in Raqqa is dying… human and moral disaster is coming

Thalassemia Center in Raqqa is the main center in the eastern region of Syria, where nearly 369 children from Raqqa and 300 children from eastern provinces in addition to displaced children were receiving treatment at this center, the most important work by the center to save children was:

1. Monthly blood transfusion to maintain normal hemoglobin levels in blood.
2. Provide medicines and treatment needs that are used on a daily basis.
3. Providing alcohol, plaster, cotton, allergy injection and blood transfusion equipment.
4. periodical laboratory analysis to monitor hemoglobin and iron percentage in blood.
5. provide psychological support for children and subsidies and communicate with the Red Crescent to help them.

The risk of treatment neglecting :

1. Severe chronic anemia.
2. Bone abnormalities especially in skull, and other bones of body in general, and thinning of the bones.
3. physical and mental growth delay and delay in puberty.
4. liver and spleen enlargement, causing inflation in the abdomen.
5. problems in the teeth.
6. immune weakness which may lead to death.

The number of deaths has increased due to the loss of all essential types of medicines at the center, causing what called Iron poisoning due to high iron levels in blood, and we here mention children names who have died during 2014 for lack of Thalassemia treatment:

1. Amani Alanon
2. Mohammed Noor Al-Jassem
3. Mahmoud al-Ahmad
4. Mohammed Khalaf Al-Mohammad
5. Nasreen Almarandy
6. Said Alssam
7. Basil al-Ahmad
8. Khadija Alhabib
9. Hiba Almoh
10. Kafaa Ismail
11. Helal al-Alaya
12. Ahmed Huwaidar
13. Reem Ismail
14. Zakaria Alabed
15. Asaad Junaid
16. Abdullah Al-Ali
17. Abdullah Al-Mousa
18. Ahmed Eid
19. Hiam Alhabud
20. Tareq Hamdan
21. Roqaiah Edilbi
22. Areej Almoslet
23. Rahma Almoslet
24. Hanan Al-Sulaiman
25. Abdullah Al-Deccan
26. Yousuf Al-Hussein
27. Rahaf Al-Moosa
28. Malik Al-Assaf
29. Rasha Al-Essa
30. Jasmine Al-Essa
31. Ahmed Al-Farhan
32. Imad Al-Farhan
33. Mahfodah Al-Ahmed
34. Basil al-Ahmad
35. Samia Al-Marrat
36. Seham Al-Moosa
37. Batool Al Moosa
38. Mahmoud Alanon
39. Abdul Karim Hamid
40. Kawthar Al-Abdullah
41. Talal Shelash
42. Kenana Al-Dhaher

media activist from the city of Raqqa, student at the Faculty of Law at the University of the Euphrates. Director of the Media Office of Raqqa, founding member of "Raqqa is Being Slaughtered Silently", founding member of the documentary project of "Sound and Picture". I work in documenting violations committed by Assad's regime and ISIS group and extremist organizations inside the city of Raqqa, as I work in programming, design and visual media. I hold a certificate of coach in digital security, and a certificate of journalist coach, and a certificate in documenting violations against human rights, and a certificate in electronic advocacy. I underwent a training under the supervision of "Cyber-Arabs" in collaboration with the Institute for War and Peace "IWPR", about the management of electronic websites and leadership of advocacy campaigns, and a training of press photography under the supervision of the photojournalist "Peter Hove Olesen".